"we almost dated" is such a weird relationship to have with someone

Plus the sequel “we never got closure”

And then the side adaptation “as a result I have a weird crush that never died”

892,457 notes






On May 28th, my sister, Edna, turned 31.


Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing. 


Edna and “Cookie.” I think she was trying to play it cool. 

My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver. 


That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.) 


ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.


May 16, 2014. I wanted a picture. Edna wanted breakfast.

In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33. 


Us with mom before she died. (Obviously.)

As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome. 


Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome. 

In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street  -  NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners. 

Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.” 

Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this: 


YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS! 

But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story. 


Edna refusing to go inside. 

These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless. 


For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.) 

Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below. 


But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry. 

By the way, we were raised by our grandma. Edna and her were very close.


She’s dead, too. Surprise.

She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna. 

So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs -  I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”) 

But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].” 

He was one of the two caseworkers that contributed to the report I mentioned above, which also included this: 


So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!

Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them

I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.


Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed. 

Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.

That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding. 

I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled. 

Thank you, 


Facebook:  facebook.com/eisforedna

Twitter: @EisforEdna 

This made me cry



This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit

They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.

I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.


(Source: )

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Lmfao we cuddle for legit 3 min then we part ways on our Cal king bed and zzzzz….

(Source: oatmeal)

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so my family plays this game where if someone is holding something and you yell “drop the bass” they have to drop what they’re holding so my mom was holding a carton of eggs so i yelled it and she looked me dead in the eye, dropped then eggs on the floor and whispered “you’ve gone too far


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I didn’t fall in love with you. I walked into love with you, with my eyes wide open, choosing to take every step along the way. I do believe in fate and destiny, but I also believe we are only fated to do the things that we’d choose anyway. And I’d choose you; in a hundred lifetimes, in a hundred worlds, in any version of reality, I’d find you and I’d choose you.
(via spuandi)

(Source: aknai)

85,681 notes

What though the field be lost?
All is not lost; the unconquerable Will,
And study of revenge, immortal hate,
And courage never to submit or yield:
And what is else not to be overcome?
That Glory never shall his wrath or might
Extort from me.

John Milton, Paradise Lost

A very beautiful line that caught my eye as I was reading.

(via wanderinglistener)

14 notes



Well, we’ve once again reached that special time of the year where some skinny nerd sweats and cries and tries to scrape together money for a west coast comic book convention so they can see their peers and also maybe make a complete ass of themselves in front of Real Artists

That’s right—I’m going to Comic Con :V

I’m doing something a little different to raise funds this year, though. An art raffle! Four commission slots, one for each of the next four weeks, given to a lucky Tumblr follower via a random drawing.

Here’s how it works:

  • Starting today and continuing for the next four weeks, I’ll be raffling off one of four commission slots
  • $1.00 (paid via Paypal) buys you 1 entry. You can buy as many or as few entries as you like. But the minimum amount is 1.
  • There will be one drawing per week, meaning there will be four chances to win!
  • There is no time limit to buy entries, either. So if money’s tight one week, you can hold off and buy an entry the next week or the week after. No biggie.
  • You can also buy entries for other people! Just be sure to include their tumblr username in your paypal payment.
  • Entries open today, and the first drawing will be on Monday, June 30th. There will be a drawing every following Monday between June 30th and July 21st. But I’ll be sure to remind people so they don’t forget~


Okay, first: calm your shorts. Second, I had considered it, but I decided this way was better for a few reasons

  • I’m on the cusp of starting a full time position at my current job, so my time and energy to dedicate toward trying to speed through however-many $25 commissions in four weeks is very, very limited.
  • Also, admittedly, my current backlog is kind of long. With a low amount of slots, it’s easier to stagger newer work with older work and avoid risking Complete Commission Burnout
  • I’ve had a lot of people tell me that they’ve wanted to commission me for a long time but have not had the funds to do so (I feel u). With a raffle, people who would otherwise not be able to afford a commission from me could have a chance to get something from me for as low as a dollar!
  • It’s a lot less limiting than doing an auction, which is usually exclusive to places like Weasyl. (And the thought of trying to manage an auction over Tumblr makes me want to tear my hair out.)

I’m now currently accepting entries for the first commission slot, and the drawing will be on Monday, June 30th! Then every following Monday after that until the final drawing on Monday, July 21st.

My current Paypal address is adriofthedead@gmail.com. When you send money for your entry, select “Goods and Services”. Please be sure to include your Tumblr name or the Tumblr name of the person you’re buying entries for in the “Email to recipient” section.

Thanks, and good luck!! The first drawing will be this coming Monday!

121 notes


Iron Mash! Series - Iron Man & Others Crossover

By Kode Logic | [Full Gallery]

Society6 | Twitter | Facebook | DeviantArt | Flickr | Behance

8,726 notes


When you try the hardest not to wake up your parents

(Source: kurtzisa)

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